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Ensuring parents and providers have access to and are heard by those making laws and decisions is crucial and an integral part of the way Illinois Policy Team does our advocacy and policy work. Start Early’s National Home Visiting Summit offers an opportunity to bring together early childhood leaders from across the country to advance the home visiting field. 

It is also a chance to participate in advocacy through Hill Visits and meeting with the Congressional delegation to talk about the importance and impact of home visiting and funding for these programs. During this year’s summit, Start Early Illinois helped coordinate a group of advocates, including leaders in the field, program directors, home visitors, professional development providers, and families to meet with our state’s delegation while in Washington, D.C. 

Parent advocacy in home visiting will be particularly important as the field prepares for the next reauthorization of the federal Maternal, Infant, and Early Childhood Home Visiting (MIECHV) program. The program is authorized through Federal Fiscal Year 2027, which means that Congress will need to reauthorize the program before the following fiscal year. As the field gears up to educate lawmakers on the importance of home visiting and raise key priorities for strengthening MIECHV, we encourage you to stay tuned to Start Early’s advocacy communications.   

 

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We’re delighted to share the perspective of one parent, Brittany Porter on participating in the Summit and the Capitol Hill visits: 

When Brittany walked into Congressman Jonathan Jackson’s office in February with her 3-year-old son Caylon, she wasn’t there as a policy expert or seasoned advocate. She was there as a mom with a story to tell about how home visiting services, through Kids Above All in Chicago, had made a difference in their lives.

“We met with Congressman Jonathan Jackson, and I just saw how genuine he was,” Brittany recalls. “Sometimes we tend to think that people who have power or that are in a position of authority could be considered snobbish or conceited, but really a lot of them are just human beings with feelings like us.”

The meeting was part of the Capitol Hill Visits during Start Early’s 2025 National Home Visiting Summit. Each year, Hill Visits provide an opportunity for parents like Brittany share their experiences with lawmakers to help them understand the real-world impact of these programs. What made this particular visit memorable wasn’t just the policy conversation, it was watching her young son take center stage.

After Caylon signed his name in the office guestbook, something clicked. “He really gravitated toward Caylon. It was so natural,” Brittany explains. “I always teach Caylon to shake with your right hand, to have a firm grip. The fact that he was able to do that, the fact that the Congressman embraced him… it was almost like it was meant to happen.”

What struck Brittany most about the experience was how comfortable it felt. Despite any pre-meeting nerves, she found herself speaking naturally about her family’s experience. “I didn’t feel anxious; I didn’t have anxiety. It’s kind of like it just flowed for us, it was right in that space.” This comfort came from recognizing that effective advocacy doesn’t require fancy credentials or political training. “I’m just a human being, I’m just a parent, I’m a mom,” she says. “If I could just speak on our behalf and really impact lawmakers, members of Congress… It’s just about being vocal and telling my story.”

Brittany’s advocacy is rooted in her personal experience with home visiting services, which provided crucial support when she needed it most. She’s particularly passionate about the program’s role as a support system for new parents navigating challenges that aren’t always visible to friends and family. “I think that for me, the first thing that comes to mind is a support system,” she explains. “Postpartum is real, depression is real. Sometimes, you want to open up, but you may not want to open up to everyone or even the people closer to you, maybe your parents or friends. But to actually have the support system from the program, somebody to work with me and pat me on the back and say ‘Mom, you’re doing a phenomenal job.’”

Brittany’s Capitol Hill experience offers a roadmap for other parents considering participating in advocacy. Brittany met with advocates from Start Early and Kids Above All to plan the logistics of the visit and brainstorm about shared messaging. Brittany’s approach was straightforward: show up as yourself, share your story, and trust that your experience matters. When parents step forward to share their experiences, they’re not just representing their own families—they’re giving lawmakers a clear picture of how home visiting programs work in real life. These conversations help ensure that policymakers understand the human impact behind the funding decisions they make.

Brittany’s experience proves that you don’t need to be an expert in policy or politics. You just need to be willing to share your story and trust that your voice matters. For parents and caregivers interested in participating in future advocacy, stay in touch with Start Early’s Illinois Policy Team and sign-up for the National Home Visiting Summit’s Advocacy Policy Community of Practice.

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Ensuring parents and providers have access to and are heard by those making laws and decisions is crucial and an integral part of the way Illinois Policy Team does our advocacy and policy work. Start Early’s National Home Visiting Summit offers an opportunity to bring together early childhood leaders from across the country to advance the home visiting field. 

It is also a chance to participate in advocacy through Hill Visits and meeting with the Congressional delegation to talk about the importance and impact of home visiting and funding for these programs. During this year’s summit, Start Early Illinois helped coordinate a group of advocates, including leaders in the field, program directors, home visitors, professional development providers, and families to meet with our state’s delegation while in Washington, D.C. 

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We’re delighted to share the perspective of one provider, Niah Hamilton, on participating in the Summit and the Capitol Hill visits: 

I have been in the field of home visiting for 13 years under the federal Maternal Infant Early Childhood Home Visiting (MIECHV) grant. I love seeing babies grow into thriving scholars. Being an intake coordinator, I am the first person families meet to tell their stories that too often are left unheard. So, because of this, when I was asked to join the National Home Visiting Summit, I was thrilled and honored to bring mine and the families’ voices to decision-makers. In the past, I have attended large events such as Early Child Advocacy Day in Springfield. But this was my first time meeting with any legislator in the capacity that we did.  

At first it was a little intimidating walking into the Capital Building…and then it was amazement and wonder! I thought to myself, “I am actually here.” The staff and aides in the legislative offices were very open and wanted to hear our stories and voices. I felt heard and understood, and it seemed like they wanted the same things that we did for our families in Illinois. The biggest topic we were going to cover was keeping Medicaid available for families. I appreciated the fact that the staff were interested in the families’ experiences. They asked that we send them more family impact stories.  

What seemed to resonate most with the people I met with was the potential impact of funding cuts on families and how many of our families depend on Medicaid benefits. I was honored to represent Illinois and my local community of Danville. It seemed surreal! 

When I came back, I wanted to share my experience with everyone I met. This experience was empowering for me personally, because I felt important, heard, and valued, and it definitely changed how I view my role in shaping policies. I honestly had no idea my role could be so influential. I hope the legislators and staff remember that those on the ground working with the families, who are most impacted, are very passionate about the work.  I shared with all my co-workers how their roles could also be an influence at the federal level.  

 Thank you again for the opportunity and I hope to attend again in the future. 

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The Illinois home visiting workforce plays a critical role in supporting young children and families, ensuring they receive the care, guidance and resources they need for a strong start in life. Recognizing the importance of recruiting and retaining a highly qualified workforce, and at the request of numerous advocates and programs over many years, the Illinois Department of Human Services Division of Early Childhood (IDHS-DEC) released salary floors for their home visiting workforce in FY23, to be required starting in FY25. The newly released FY25 Illinois Home Visiting Compensation Report demonstrates the significant progress made—but also highlights the continued need for investment as IDHS-DEC and Illinois State Board of Education (ISBE) home visiting programs transition to the newly created Illinois Department of Early Childhood (IDEC) in FY26. 

Why Salary Floors Matter

The introduction of salary floors—on the recommendation of advocates and the Health and Home Visiting committee of the Illinois Early Learning Council—was a key step in addressing workforce challenges including recruitment, staff retention, disparities between programs and systemic under-compensation. By ensuring home visitors and supervisors receive a minimum level of compensation, IDHS-DEC has made meaningful strides toward building a more stable and supported workforce. 

According to the report, 100% of home visitors in IDHS-DEC and MIECHV programs now meet or exceed the mandated salary floor. Furthermore, 88% of supervisors are now meeting the recommended salary levels, even though their salary floor was not required by the state. This progress underscores that setting clear compensation expectations can drive real change, as well as potentially improve other factors, such as retention and the quality of services. There is a need for additional data in this area to determine whether these salary floors are sufficient, as well as precisely how salaries impact other aspects of home visiting programs and workforce retention. With the creation of IDEC, the state now has the opportunity to build this data into the structure of the Illinois home visiting system going forward.

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Ongoing Changes: A Call for Continued Action

While this report shows significant progress, it also raises concerns about the slowing pace of salary increases. After an initial surge in compensation following the implementation of recommended salary floors, wage growth has decelerated. The average home visitor salary increased by just 2% from FY24 to FY25, while inflation continues to rise, threatening to erode these gains. Without further action, the home visiting workforce will continue to face challenges in achieving and sustaining competitive wages, which could impact recruitment and retention efforts in the coming years. 

What’s Next?

The achievements of IDHS-DEC and MIECHV programs are a milestone, but it’s not the final step. There’s still work to do to ensure home visitors and supervisors receive fair and competitive wages in the face of economic changes. 

  1. Advocate for Continued Funding: We urge state leaders to commit to ongoing salary adjustments that make wages competitive and keep pace with inflation. 
  2. Support Workforce Retention Efforts: Higher wages are essential, but so are professional development opportunities, benefits and workplace support. Additional support is necessary to retain skilled home visitors. 
  3. Share Successes: The overwhelming success of salary floors for IDHS-DEC and MIECHV home visiting programs highlights the potential impact of implementing salary floors for providers, but not all funders have implemented salary floors yet. We encourage funders—both within home visiting and across other early childhood programs—to consider implementing salary floors as part of their continued investment in the early childhood workforce. 

Looking Ahead

Illinois IDHS-DEC programs have taken a bold and necessary step by implementing a salary floor for home visitors, and the results prove its effectiveness. However, this success must be maintained and expanded. As inflation rises and workforce needs evolve, further efforts will be required to ensure competitive, livable wages for home visitors and the early childhood workforce at large. 

By advocating for sustained and increased funding, we can continue to strengthen the home visiting workforce—ensuring every child and family receives the support they deserve. Now is the time to build on this progress and secure a future where early childhood professionals are valued, supported and fairly compensated. 

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In May of this year, Mayor Brandon Johnson announced a $7M investment of the City’s Corporate Fund dollars to be distributed to 3,000 early care and education workers across Chicago, recognizing the need for increased compensation for this essential workforce. This investment resulted directly from the hard work of early care and education workers and advocates during last year’s budget engagement process and this year they are back to say the work is far from over. More investment is needed in 2026 to ensure children arrive at kindergarten ready to learn—and to support the professionals who care for and educate them in the years before school entry. 

Research shows that children who participate in high-quality early childhood programs are 25 times more likely to graduate from high school and four times more likely to earn a bachelor’s degree. They also experience better lifelong health outcomes and are less likely to become involved in the criminal justice system. Economists have found that these programs yield a 13% return on investment annually. 

Despite this evidence, too many Chicago children still enter kindergarten underprepared in math, literacy and social-emotional skills. This is due, in part, to ongoing gaps in access to early learning programs. 

2026 Chicago Early Childhood Budget Priorities 

To address these challenges, advocates are calling for targeted increases in the City’s 2026 budget: 

  • $10 million increase for the Department of Family and Support Services (DFSS) Children’s Services Division to: 
    • Sustain 2025 wage increases for 3,000 early care and education providers 
    • Expand these wage increases to reach thousands of additional early childhood educators 
  • $1 million investment to expand the Chicago Early Learning Workforce Scholarship, allowing over 100 additional early educators to pursue degrees and enter the workforce. 
  • $2 million restoration funding to the Chicago Department of Public Health’s Family Connects Chicago program, which experienced a $4.7 million funding cut in 2025. Family Connects provides postpartum nurse home visits to ensure birthing families get a healthy start. 

Contact your alderman now to ask them to support these requests.  

While the immediate budget requests are vital, stakeholders are also calling on the Mayor’s Office and City Council to begin building toward a long-term vision: establishing a dedicated revenue stream to sustainably support early childhood services across Chicago. 

Cities like Denver, San Antonio and Seattle have successfully created voter-approved children’s funds to guarantee stable funding for early learning, afterschool and youth development programs. Chicago can—and should—do the same. 

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Over the weekend, the Illinois General Assembly approved a Fiscal Year 2026 state budget that includes a substantial increase in funding for the state’s child care system. Unfortunately, the spending plan maintains current funding levels for other critical early childhood programs – a departure from the multi-year investments pledged by Governor JB Pritzker in 2023 as part of the administration’s Smart Start Illinois initiative. We expect the governor to sign and approve this final budget package soon.

“Start Early commends Governor Pritzker and the General Assembly for their continued commitments to ensure Illinois families have the resources they need to thrive,” Start Early Illinois’ Executive Director Celena Sarillo said. “Although this final budget does not include all of the early childhood funding for which families and providers advocated, we are ready to work with policymakers, advocates and families this upcoming year to continue expanding access and strengthening programs and services, like preschool, home visiting and Early Intervention, that give children their best chance at success in school and in life.”

The budget package contains $85 million in new state funding for the Child Care Assistance Program (CCAP) and $90 million in new funding for Smart Start Workforce Grants (SSWG). The CCAP dollars will allow the Illinois Department of Human Services (IDHS) to raise reimbursement rates for home providers while accommodating a growing caseload and avoiding harmful waitlists and delayed payments. Additional funding for the SSWG program enables IDHS to maintain existing grants to programs.

Start Early is disappointed by the decision to flat-fund the Early Childhood Block Grant (ECBG), the Maternal and Child Home Visiting (MCHV) program and the Early Intervention (EI) program despite an earlier commitment from the Pritzker Administration to increase spending on the programs in FY26 as part of its original Smart Start Illinois plan.

“Amid an uncertain and evolving federal landscape, Start Early is grateful that our state’s leaders remained focused on moving forward a balanced budget that aims to protect Illinois communities first and supports families and those who care for them,” Start Early Vice President of Illinois Policy Ireta Gasner said. “However, additional funding is needed to ensure timely services for infants and toddlers with disabilities and developmental delays and a well-prepared and compensated workforce – both of which are foundations of an equitable early childhood system. This budget is a small step forward, but much is left to be done.”

Notably, in April, IDHS announced a rate increase for Early Intervention providers, which is to be funded by accumulated Medicaid dollars. The rate increase, informed by the new EI cost model and service delay data, prioritizes service providers with reimbursement rates currently below 50% of the modeled cost. While the administration’s plan to increase rates for many providers next year is a welcome one, the increase represents only a fraction of what is needed to stabilize the EI system. As such, we are disappointed with the final appropriation for EI, as we believe the approved budget is inadequate to address the ongoing workforce crisis and distressingly high service delays.

Here are the specifics of what’s in the final package:

  • $85 million increase for the Child Care Assistance Program at the Illinois Department of Human Services (IDHS) for caseload growth and rate increases for home providers
  • $90 million increase for the Smart Start Workforce Grants at IDHS to replace expiring federal funds
  • Early Intervention provider rate increase (learn more)
  • $7.5 million increase in operations funding for the Illinois Department of Early Childhood

No additional funding for the following programs was included:

  • The Early Childhood Block Grant at the Illinois State Board of Education, which supports the state’s Prevention Initiative, Preschool for All and Preschool for All Expansion programs
  • The Early Intervention program at IDHS
  • Evidence-based home visiting programs at IDHS
  • The Early Childhood Access Consortium for Equity (ECACE) scholarship program

These legislative victories and increased appropriations were achieved only because of the unwavering dedication of parents, providers, and advocates across Illinois. With substantial work still needed to close critical funding gaps for programs like EI and ECACE, we look forward to continuing the work of making Illinois the best state in America in which to raise young children.

* * * *

Several other important measures impacting the early care and education system – and the families and workforce who are a part of it – were approved by the legislature this session, including:

  • HB3439 (Rep. Mason, Sen. Johnson) – improves basic child care licensing functions in the short-term by codifying into law existing DCFS guidance regarding provisional hiring and requiring staff background checks to be completed every five years instead of every three years.
  • HB3327 (Rep. Yang Rohr, Sen. Villivalam) – improves the Early Intervention (EI) referral process for babies born into a Neonatal Intensive Care Unit (NICU) by requiring hospital staff to initiate a written referral for families whose children are automatically eligible for EI services.
  • SB1555 (Sen. Loughran Cappel, Rep. Hirschauer) – adds the Secretary of the Illinois Department of Early Childhood (IDEC) as an ex-officio voting member to the Advisory Council on the Education of Children with Disabilities
  • HB3446 (Rep. Canty, Sen. Loughran Cappel) – requires IDEC to publish and update annually a comprehensive list of college early childhood courses child care teacher and director candidates can take to meet required qualifications. The bill also requires IDEC to create a process to verify which early childhood courses make the list.
  • SB406 (Sen. Aquino, Rep. Mason) – requires IDEC to establish an Early Childhood Integrated Data System (ECIDS) that will be used to make equity driven, inclusive, and data-informed decisions within the early childhood system.
  • SB2437 (Sen. Aquino, Rep. Moeller) – the Medicaid omnibus, which includes language that requires hospitals and birthing centers to allow patients to have Medicaid-approved doulas present during all phases of labor and birth. The doula will not count toward the number of guests permitted to a patient.
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On July 1st, 2026, the new Illinois Department of Early Childhood (IDEC) will officially administer our state’s early childhood programs and services and child care licensing will move from the Department of Children and Family Services (DCFS) to IDEC. In the meantime, IDEC officials are busy not only planning the transition to ensure a smooth launch, but they have also set redesigning Illinois’s licensing system as a priority over the next year. 

Start Early believes that by improving some basic child care licensing functions now, IDEC could turn their focus to important long-term aspects of reforming child care licensing. Therefore, in response to years of child care educators’ complaints and concerns with our current licensing system, Start Early introduced House Bill (HB) 3439. This bill provided common-sense solutions to improve licensing functions and reduce the state’s background check processing delays, which have been a constant problem for several years and there simply haven’t been any significant improvements from the state.  

According to a survey conducted by Start Early, child care directors are consistently waiting more than 5 weeks for background check clearances for prospective staff. In neighboring states like Iowa, full background check clearances are typically issued within one week. In Wisconsin, there’s a portal that allows prospective staff to request background checks and simplifies the submission of documents. Without a streamlined background check process in Illinois that is transparent, efficient and easy to navigate, child care directors will continue to lose qualified staff to other industries.  

People are unwilling to wait for clearance because they need to work. Classrooms have needed to close and families have been asked to pick-up early due to staffing needs.

Child Care Director

After months of bill negotiations with both DCFS and DEC, the final version of HB 3439 includes the following: 

  • Probationary Hiring: child care facilities may hire prospective staff on a probationary basis, after their Illinois State Police (ISP) or Federal Bureau of Investigation (FBI) background check has been cleared. Prospective staff may not be left alone with children until they have been issued a full background check clearance.  
    • If prospective staff have lived out-of-state over the past 5 years, federal regulations also require them to receive a criminal history clearance from that state(s) before they can be hired probationally. 
  • Background check cycle: Requires staff background checks to be completed every 5 years, instead of every 3 years. 

Last week, HB 3439 passed the Illinois General Assembly and will make its way to the Governor for his signature before becoming law. Although we celebrate that this legislation will bring some relief to child care directors and prospective staff, we also recognize that child care educators need more help than what is provided in the negotiated version of HB 3439. In IDEC’s effort to reimagine licensing, we urge the Department to focus its immediate efforts on reforming the entirety of the background check process, from beginning to end. If the goal of IDEC officials is to reform the state’s early learning infrastructure to one that is “simpler, fairer, better,” the child care background check process is a perfect place to start. 

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In April of this year, the Illinois Department of Human Services (IDHS) announced a proposed rate increase for Early Intervention (EI) providers, funded by $10 million in one-time accumulated Medicaid dollars, pending approval of the Fiscal Year 2026 budget. The increase, informed by the new EI cost model and service delay data, prioritizes services where provider rates are currently below 50% of the modeled cost and for services that have the greatest waiting lists. Developmental Therapy (DT), Physical Therapy (PT) and Vision services are slated to receive an 8% rate increase, while Occupational Therapy (OT), Speech Therapy, Audiology and Aural Rehabilitation will receive a 5% boost. Service coordinators will also see a 5% increase. Many essential services—including Nursing, Nutrition, Psychology, Social Work, Interpretation and Medical Diagnostics—will see no increase at this time. 

While the Department’s plan to increase rates for many providers in FY26 is a welcome one, it represents only a fraction of what is needed to stabilize Illinois’ EI system. A recent New America blog post by Abby McCartney, Senior Director at Afton Partners, highlights findings from the state-commissioned cost model developed with extensive input from hundreds of EI providers and families. Their research shows that EI providers currently earn about half of what they could make in other fields requiring similar credentials—worsening Illinois’ growing provider shortage, ballooning caseloads, and increasing wait times for families. The model calls for increasing provider rates by an average of 95%. 

Join advocates across the state in calling for a $60 million increase in Early Intervention funding in the FY 2026 Illinois state budget

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The proposed rate increases are an important acknowledgment of the crisis but not nearly enough to address it. Even with these targeted adjustments, many provider rates remain significantly below the modeled cost of delivering services. Without deeper investment, staffing shortages and harmful service delays will persist. The newly developed cost model offers a powerful, data-driven tool to guide future policy and investment decisions—but it will only be effective if Illinois continues to act on what the data clearly shows. Service delays have nearly doubled over the last three years, reaching historically high levels. 

The fight for greater investment in EI for FY26 is far from over. We urge all EI stakeholders—providers, families, and advocates—to urge the Illinois General Assembly to appropriate an additional $60 million in funding in the upcoming state budget. This critical investment would allow IDHS to authorize more substantial rate increases, move closer to covering the full cost of services and stabilize the EI system for infants, toddlers and their families. 

Join us in calling on the General Assembly to substantially increase EI funding in the FY26 state budget — and help ensure infants, toddlers, and their families can get the services they need and are entitled to receive! 

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Funding for early childhood education in Chicago is complex and ever-changing based on decisions made by lawmakers and agency leaders at the federal, state, and city levels. As the City prepares to engage in 2026 budget planning, the Illinois General Assembly prepares to approve Governor Pritzker’s proposed budget, and the new federal administration considers nationwide cuts to core early care and education programs, Chicago residents should take note of how these impending changes will impact some of the most crucial programs that serve Chicago’s youngest residents and their families. Here is an outlook on what’s to come: 

Federal Head Start and Early Head Start funding currently provides early care and education services to over 11,000 Chicagoans ages 0-5 in over 150 programs across the city. Any decisions made by the new federal administration or Congress on cuts to this Department of Health and Human Services-funded program could impact Chicago’s Early/Head Start programs, staff, and families. A loss or decrease in these funds could result in a greater need for state and city investment to sustain Chicago’s early childhood system.  

The state of Illinois’ Early Childhood Block Grant, which Chicago currently receives $284M of by state statute, is level-funded in the governor’s proposed budget, which means the largest source of funding for CPS pre-k and the Chicago Early Learning infrastructure remains the same and there will be no increases in funding for the upcoming RFP for community-based programs to apply for or re-apply for the 40% of these funds that are sub-granted by the City’s Department of Family and Support Services.  

And, while state budget increases to the Child Care Assistance program and Early Intervention will have the same limited impact on Chicago stakeholders as the rest of the state, the increase in funding for the Smart Start Workforce Grants will have an even more limited impact in Chicago, given the portion of Chicago’s young children who are served in programs that blend and braid public funds and therefore do not qualify for these grants.  

The City of Chicago’s Corporate Fund investment in early childhood education took a roughly $2M hit in the 2025 budget after being level-funded at $13M for several years. What this means remains to be seen, but this fund typically supports staffing at DFSS, in addition to key early childhood system infrastructure supports like the Chicago Early Learning Workforce Scholarship and Chicago Early Childhood Integrated Data System. This decrease in Corporate Fund dollars happened despite the child care workforce crisis gaining increased attention from members of City Council during the 2025 budget process.

The 2025 City budget also lacked sustainable funding for Family Connects Chicago, an essential program that ensures all families have access to the services they need following the birth of a child.  

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In a year when the City was facing a nearly $1B budget deficit, a lack of funding increases for essential services – though disappointing – is not surprising. It is increasingly clear that the City will need to seek additional revenue to fully fund the vast array of services that support families across Chicago when their children are young. In the meantime, efforts to improve Chicago’s early care and education system are underway, with Mayor Brandon Johnson recently releasing the Every Child Ready Chicago Strategic Framework, a three-year plan to ensure that Chicago’s youngest residents have inclusive access to high-quality early childhood experiences. One of the first steps outlined in this framework is to create a revised cost model for Chicago that accurately reflects the true cost of delivering high-quality early childhood services under favorable working conditions. Such a cost model may be just the catalyst advocates need to pursue a successful campaign for increased City investment in early childhood education.  

Follow along with Start Early as we track these developments and prepare to work with other advocates to promote increases to early childhood funding during the 2026 budget engagement process.  

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On March 4, Start Early along with our partners at Child Care For All, COFI, Evanston Early Childhood Council, Illinois Action for Children, Raising Illinois, SEIU, and We, the Village brought over 300 advocates down to Springfield to advocate for Illinois’ youngest learners. Advocates shared their perspectives with legislators on the impact that increased funding for the Early Childhood Block Grant, ECACE, child care, home visiting and Early Intervention would have on Illinois families and providers.

The spring legislative session will continue through May 31, and we aren’t slowing down our advocacy efforts! Here’s how you can still participate:

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Despite the devastating delays thousands of families across Illinois are experiencing when trying to access the Early Intervention (EI) services they are legally entitled to receive, Governor JB Pritzker’s Fiscal Year 2026 budget proposal does not include any additional state funds for the EI program, which provides critical services to infants and toddlers who have or are at risk for significant developmental delays and disabilities. Instead, the administration is recommending a small rate increase for providers at a cost of $10 million supported by Medicaid funds. While we applaud IDHS and HFS for ensuring we are maximizing Medicaid funds, the funding increase is not nearly enough to address the historically high service delays and long waitlists that are directly tied to the workforce shortage.   

The proposal to flat fund EI is concerning and a departure from the multi-year investments announced in 2023 as part of the administration’s Smart Start Illinois initiative, which included a “commitment to regular increases in SFY25-SFY27 on Early Intervention funding mechanisms” following efforts to study and improve EI infrastructure and funding methods. Since then, a cost model study commissioned by IDHS-DEC found that the state needs to raise current spending by an additional $168 million annually to adequately compensate the workforce and stabilize the program. IDHS also invested in cross-state research, which shows that Illinois EI provider reimbursement rates are significantly lower than other states, forcing professionals to leave the field for higher-paying jobs in hospitals, schools, and private practice. These findings underscore a massive funding gap in pay for the workforce and a need for immense investment.  

Illinois’ EI program is at a breaking point and the crisis has recently received more media attention than ever before. For the past several months, EI families, providers, doctors and advocates have raised their voices to call for an additional $60 million in the FY26 budget through statewide rallies, 2,200+ petition signatures, and meetings with the Governor’s Office about this issue. It’s time for the state to show their voices have been heard. What will it take for our state to prioritize the needs and rights of infants and toddlers with delays or disabilities and their families? How much more harm will be done before we decide to take action?  

Join advocates across the state in calling for a $60 million increase in Early Intervention funding in the FY 2026 Illinois state budget

Act Now

While the Governor’s proposal does not include an increase in state funding, the Illinois General Assembly has an opportunity to address the EI program’s stubbornly high service delays and workforce crisis. We urge the legislature to increase funding for the EI program by $60 million in the FY26 budget, allowing IDHS to authorize a meaningful rate increase for providers and get closer to the investment needed to stabilize the program. Without additional state funding this year, paired with substantial rate increases, providers will continue to leave the EI program and thousands more children will be denied the services they need. No one wins when we deny these services – the families suffer, developmental outcomes worsen and become costlier to address, and the state places itself at increased risk for the failure to meet its legal obligation to provide services to children and families. The time to act is now.   #babiescantwait.  

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